COURSE FOR HEALTH CARE GUIDELINES DEVELOPERS ON TREATMENT OF RARE DISEASES

Milan - 11-12 Febbraio 2016


IRCCS - MARIO NEGRI , Milan (Italy)-http://www.rarebestpractices.eu/

The present course is part of the capacity building activities of the project RARE-Bestpractices. These activities intend to promote guideline quality standards for rare diseases across European Member States and to support the upcoming European Reference Networks and Centres of Expertise in the development of their capacity to produce and use health care guideline on rare diseases.

The course will provide participants with the opportunity to acquire skills necessary to produce health care guidelines on treatment of rare diseases. The course will focus on an overview on general guideline production and specific to rare diseases. The following topics will be addressed: scope, panel choice, developing clinical questions, planning the evidence review, literature searching, quality of evidence, developing and wording recommendations, implementation and dissemination. The course format consists of: lectures and small groups work/exercises.